PatientsLikeMe: an inspiring healthcare brand creating greater value for patients

PatientsLikeMe is dedicated to making a difference in the lives of patients diagnosed with life-changing diseases. It was co-founded by Ben and Jamie Heywood after their brother Stephen (who has since passed away) was diagnosed with ALS. And make a difference they have, as they were recently recognized by Fast Company as #2 on the list of the top ten most innovative healthcare companies.

They state that their goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases. To make this happen, we’ve created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits. Their collective data has shown enormous power to comfort, inspire, explain, predict and empower.

PatientsLikeMe is a wonderful role model for how modern brands will succeed by helping customers (in this case, patients) achieve more than they ever could on their own. Here are some reasons why:

1. Committing versus campaigning. Going forward, brands will be defined not by what they say to people, but by what they say and do with people (in this case, 45,000 patients).

2. Value through content. We go to the web because there’s something we need to do; a problem we need to solve. So we’re looking for information, insights and advice that we can use.  In this case, it’s content that’s literally saving and enhancing lives.

3. Collaboration. PatientsLikeMe brings together company, customers (patients) and partners (doctors, pharma, medical device companies) collaborating together to help each grow stronger.

4.  Becoming integral to people’s lives. PatientsLikeMe members don’t just share their experiences and stories; they turn their symptoms and treatments into hard data. By telling and sharing so much, members are creating a rich database of disease treatment and patient experience.

5. Transparency. While many companies, and healthcare websites, have a Privacy Policy, PatientsLikeMe has an Openness Policy. They believe that data belongs to you the patient to share with other patients, caregivers, physicians, researchers, pharmaceutical and medical device companies, and anyone else that can help make patients’ lives better.

6. Understanding How Your Audiences Integrate Technology Into Their Lives. PatientsLikeMe patients are heavily involved in what Forrester Research refers to as the groundswell. So this site is the perfect medium for them to contribute, comment, write, upload and publish.

7. Creating brand advocates. People who feel a sense of ownership in the brand, and are motivated to help it succeed will take an active role helping friends or family members make  a decision about a product. In this case, the motivation is literally a matter of life and death.

8. The product is the marketing. And PatientsLikeMe has created a better product.